A few months ago my friend and editor, Julie Golimowski, asked me to write about my experience as a quilter with MS. The article is part of a feature on Multiple Sclerosis in the summer issue of Designer Quilts magazine.
Since hiring me as a pattern proofreader four years ago, Julie has shown concern about my health and the impact of MS on my life and work. Does the stress of deadlines increase my muscle tension and fatigue? YES. Is my ability to concentrate good enough to check math, diagrams, and wording for ten quilt projects an issue? MOST of the time. Am I able to climb stairs to get to the computer where I do my work? NOT ANY MORE!
Over time, the questions have become more specific. Am I in pain? SOMETIMES. What kinds of medical tests confirmed my diagnosis? MRI and SPINAL TAP. What medications do I take? DAILY INJECTIONS and more PILLS than you want to know!
Julie’s interest became more than concern for a good friend when she herself was diagnosed with MS. She revealed her condition to her readers in this latest, and last issue of the magazine:
Designer Quilts Magazine (formerly Designers’ Quarters) has ceased publication. In 2006, Julie, the editor of Designer Quilts Magazine and my wife, was diagnosed with Multiple Sclerosis. MS is an incurable disease that attacks the central nervous system. Lesions in the brain and on the spine cause a variety of symptoms from blindness to the inability to walk. Julie has relapsing and remitting MS which means that her symptoms come and go without warning and it is no longer possible for us to publish our magazine.
The final issue of Designer Quilts Magazine, Summer 2008, is now available. If you would like to order this issue or any back issues, please visit our website at: http://www.designersquarters.com/.
Sincerely, Joe Golimowski Publisher, Designer Quilts Magazine
Julie’s attitude is good, which I think is half the battle in managing this debilitating disease. Her symptoms are different from mine and there is no predicting the path MS will take in her life. No doubt, she will have good days and bad days. I will always be here to counsel and commiserate , although I wish the need weren’t there. I’d much rather talk to her about measurements, diagrams, and wording of directions for quilt projects. I wish I could edit MS out of all our lives!